Comparison between parents’ and patients’ satisfaction level towards cleft management using Cleft Evaluation Profile

Kim Lian Lau; Siang Ching Ong; Wan Salina  Wan Sulaiman

doi:10.31436/ijohs.v2i1.63

Authors

Lau Kim Lian Unit Ortodontik, Klinik Pergigian Kota Bharu, Jalan Mahmood, 15200 Kota Bharu, Kelantan, Malaysia.
Ong Siang Ching Unit Ortodontik, Klinik Pergigian Kota Bharu, Jalan Mahmood, 15200 Kota Bharu, Kelantan, Malaysia.
Wan Salina Wan Sulaiman Pejabat Timbalan Pergigian Kesihatan Negeri (Pergigian) Kelantan, Aras 7, Bangunan KWSP, Jalan Padang Garong, 15598 Kota Bharu, Kelantan, Malaysia.

DOI:

https://doi.org/10.31436/ijohs.v2i1.63

Keywords:

cleft lip and/ or palate (CLP), level of satisfaction, Cleft Evaluation Profile (CEP)

Abstract

Cleft lip and palate (CLP) are common birth defects that occur in approximately 1 out of every 611 newborn in Malaysia. Cleft Evaluation Profile (CEP) is a well-established method used to evaluate the patient’s level of satisfaction with the CLP treatment that they received. This study aimed to compare the level of satisfaction of cleft patients and their parents towards cleft management in Kelantan, Malaysia. The results showed that the mean scores of CEP for the parents were between 2.04 and 3.00, whilst the patient’s mean score ranged from 2.01 to 3.04. In general, nose is the most dissatisfied feature for both patients and parents with the mean score of 3.04 for patients and 3.00 for parents. Teeth was the second highest (2.97) mean scores rated by parents but it was the third highest (2.84) mean score from the patients. Lip feature scored the third highest mean score for parents, and it was the second-highest mean score for patients. Hearing was the lowest mean score for both parents and patients. Both parties were aware of the features of their facial and nose appearance. From the weighted Kappa statistic, both the parent and patient pairs demonstrated good to very good agreement for their satisfaction towards the clinical outcome. In conclusion, features related to facial appearance (nose, teeth, lip and facial profiles) require more attention and improvement during the treatment process.

References

Ali, S. Y., Abdul, Z. A., Mirani, S. A., Shaikh, M. I., Khattak, M. N., Sahito M. A. et al. (2015). Demographic data on the characterization of oral clefts in malaysia. Pakistan Oral & Dental Journal, 35(1), 108-110.

Altman, D. G. (1999). Practical statistics for medical research. London: Chapman and Hall/ CRC, 403-407.

Gatti, G. L., Freda, N., Giacomina, A., Montemagni, M., Sisti, A. (2017). Cleft lip and palate repair: our experience. The Journal of Craniofacial Surgery, 00(00),1–7.

Joycelyn, L. J., Penko, M. A., Rode, H.L. (1996). Cognition, communication, and hearing in young children with cleft lip and palate and in control children: a longitudinal study. Journal of Oral Maxillofacial Surgery, 97, 529-534.

Lansdown, R., Lloyd, J., Hunter, J. (1991). Facial deformity in childhood: severity and psychological adjustment. Child: care health and development, 17(3), 165–71.

Luyten, A., Evelien, D., Budolfsen, D., Hodges, A., Galiwango, G., Vermeersch, H. et al. (2013). Parental satisfaction in ugandan children with cleft lip and palate following synchronous lip and palatal repair. Journal of Communication Disorders, 46(4), 321–329.

Natsume, N., Kawai, T. (1986). Incidence of cleft lip and cleft palate in 39, 696 japanese babies born during 1983. International Journal of Oral Maxillofacial Surgery,15(5), 565–568.

Noar, J. H. (1991). Questionnnaire survey of attitudes and concerns of patients with cleft lip and palate and their parents. Cleft Palate-Craniofacial Journal, 28(3), 279-284.

Noor, S., Musa, S. (2007) Assessment of patients’ level of satisfaction with cleft treatment using the cleft evaluation profile. Cleft Palate-Craniofacial Journal, 44(3), 292-303.

Oral Health Division, Ministry of Health Malaysia. (2009). National Oral Health Survey of School

Children (NOHSS) 2007 6-Year-Olds. Oral Health Division, Ministry of Health Malaysia. 38-39.

Oosterkamp, B. C. M., Dijkstra, P. U., Remmelink, H. J., Van, Oort, R. P., Goorhuis-Brouwer, S. M., Sandham, A. et al. (2007). Satisfaction with treatment outcome in bilateral cleft lip and palate patients. International Journal of Oral Maxillofacial Surgery, 36(10), 890–895.

P., Ha, C., Li, B., Shi. (2016). Parent satisfaction with primary repair of paediatric cleft lip in southwest china. International Association of Oral and Maxillofacial Surgeons, 5–9.

Sell, D., Mildinhall, S., Albery, L., Wills, A. K., Sandy, J. R., Ness, A. R. et al. (2015). The Cleft Care uk study. Part 4: perceptual speech outcomes. Orthodontics and Craniofacial Research, 18(2), 36-46.

Turner, S. R., Thomas, P. W. N., Dowell, T., Rumsey, N., Sandy, J. R. (1997). Psychological outcomes amongst cleft patients and their families. British Journal of Plastic Surgery, 50, 1-9.

Williams, Alison, C., David, B., Sue, M., Terrie, M., Debbie, S. et al. (2001). Cleft lip and palate care in the United Kingdom — The clinical standards advisory group (CSAG) Study. Part 2: Dentofacial outcomes and patient satisfaction. Cleft Palate-Craniofacial Journal, 38(1), 24-29.