Children’s Experiences in Health Care Decisions: An Overview
DOI:
https://doi.org/10.31436/ijcs.v1i2.86Abstract
This article attempts to provide an overview of issues related to children’s participation in decisions relating to health care. It sets the discussion in the context of current debate about children’s participation in health care decisions and explores the extent to which children want to participate in the decision. This article concludes that children mostly occupy a minimal role in communication and decisions regarding their care. The patterns of participation of children in communication and decisions are different and fluctuate between the children and within the same child throughout their hospitalisation, depending on the participating child, their preferences, and requirements at a particular time.
References
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14. Lambert, V., Glacken, M., McCarron, M. (2011). Communication between children and health professionals in a child hospital setting: A Child Transitional Communication Model. Journal of Advanced Nursing. 2011; 67(3): 569-582.
15. Gibson F, Aldiss S, Horstman M, Kumpunen S, Richardson A. Children and young people’s experiences of cancer care: A qualitative research study using participatory methods. Int J Nurs Stud. 2010; 47(11): 1397-1407.
16. Alderson, P., Sutcliffe, K., Curtis, K. Children as partners with adults in their medical care. Archives of Disease in Childhood. 2006; 91(4): 300-303.
17. Coyne I, Amory A, Kiernan G, Gibson F. Children’s participation in shared decision-making: Children, adolescents, parents and healthcare professionals’ perspectives and experiences. Eur J Oncol Nurs. 2014; 18(3): 273-280.
18. Coyne, I., Amory, A., Gibson, F., Kiernan, G. Information sharing between healthcare professionals, parents and children with cancer: More than a matter of information exchange. European Journal of Cancer Care. 2016; 25(1): 141-156.
19. Schalkers, I., Parsons, C. S., Bunders, J. F., Dedding, C. Health professionals' perspectives on children's and young people's participation in health care: A qualitative multihospital study. Journal of Clinical Nursing. 2016; 25(7-8): 1035-1044.
20. Smith, A. B. Children and young people's participation rights in education. The International Journal of Children's Rights. 2007; 15(1): 147-164.
21. Savage, E., Callery, P. Clinic consultations with children and parents on the dietary management of cystic fibrosis. Social Science & Medicine. 2007; 64(2): 363-374.
22. Pelander, T., Leinoâ€Kilpi, H. Children’s best and worst experiences during hospitalisation. Scandinavian Journal of Caring Sciences. 2010; 24(4): 726-733.
23. Coyne, I., Kirwan, L. Ascertaining children’s wishes and feelings about hospital life. Journal of Child Health Care. 2012; 16(3): 293-304.
24. Björk M, Nordström B, Hallström I. Needs of Young Children with Cancer During Their Initial Hospitalization: An Observational Study. J Pediatr Oncol Nurs. 2006;23(4):210-219.
25. Coyne I. Consultation with children in hospital: Children, parents’ and nurses’ perspectives. Journal of Clinical Nursing. 2006; 15: 61-71.
26. Kilkelly, U., Donnelly, M. The child's right to be heard in the healthcare setting: Perspectives of children, parents and health professionals. Office of the Minister for Children. 2006.
27. Kelsey, J., Abelson-Mitchell, N., Skirton, H. (2007). Perceptions of young people about decisions in the acute healthcare environment. Nursing Children and Young People. 2007; 19(6): 14-18.
28. Runeson, I., Mårtenson, E., Enskär, K. (2007). Children's knowledge and degree of participation in decisions when undergoing a clinical diagnostic procedure. Pediatric Nursing. 2007; 33(6): 505-511.
29. Coyne I, Gallagher P. Participation in communication and decision-making: Children and young people’s experiences in a hospital setting. J Clin Nurs. 2011; 20(15-16): 2334-2343.
30. Zwaanswijk, M., Tates, K., van Dulmen, S., Hoogerbrugge, P. M., Kamps, W. A., Bensing, J. M. Young patients', parents', and survivors' communication preferences in paediatric oncology: Results of online focus groups. BMC Pediatrics. 2007; 7(1): 35-45.
2. United Nation, (1989). Convention on the Rights of the Child. New York, United Nations.
3. Coyne, I., Hayes, E., Gallagher, P., Regan, G. Giving children a voice: Investigation of children’s experiences of participation in consultation and decisions in Irish hospitals. 2006; Retrieved November 28, 2015 from http://www.lenus.ie/ hse/handle/10147/45515
4. Mayall, B. An afterword: Some reflections on a seminar series. Children's Geographies. 2012: 10(3): 347-355.
5. Donnelly M, Kilkelly U. Child-friendly healthcare: Delivering on the right to be heard. Med Law Rev. 2011; 19: 27-54.
6. Kirby P, Lanyon C, Cronin K, Sinclair R. Building a Culture of Participation Involving children and young people in policy, service planning, delivery and evaluation. 2003; Retrieved January 12, 2003 from http://dera.ioe.ac.uk/17522/1/Handbook%20-%20Building%20a%20Culture%20of%20Participation.pdf
7. Alderson, P., Montgomery, J. Health care choices: Making decisions with children (Vol. 2). Institute for Public Policy Research. 1996.
8. Franklin A, Sloper P. Participation of disabled children and young people in decision making within social services departments: A survey of current and recent activities in England. British Journal of Social Work. 2006; 13(1-2): 11-30.
9. Ruhe KM, Badarau DO, Brazzola P, Hengartner H, Elger BS, Wangmo T, et al. Participation in pediatric oncology: views of child and adolescent patients. Psychooncology. 2015; 25(9): 1036-1042.
10. Sjöberg, C., Amhliden, H., Nygren, J. M., Arvidsson, S., Svedberg, P. The perspective of children on factors influencing their participation in perioperative care. Journal of Clinical Nursing. 2015; 24(19-20): 2945-2953.
11. Runeson, I., Hallström, I., Elander, G., Hermerén, G. Children’s participation in the decisions during hospitalization: An observational study. Nursing Ethics. 2002; 9(6): 583-598.
12. Hallström, I., Elander, G. Decisionâ€making during hospitalization: Parents’ and children's involvement. Journal of Clinical Nursing. 2004; 13(3): 367-375.
13. Lambert, V., Glacken, M., McCarron, M. ‘Visibleâ€ness’: The nature of communication for children admitted to a specialist children's hospital in the Republic of Ireland. Journal of Clinical Nursing. 2008; 17(23): 3092-3102.
14. Lambert, V., Glacken, M., McCarron, M. (2011). Communication between children and health professionals in a child hospital setting: A Child Transitional Communication Model. Journal of Advanced Nursing. 2011; 67(3): 569-582.
15. Gibson F, Aldiss S, Horstman M, Kumpunen S, Richardson A. Children and young people’s experiences of cancer care: A qualitative research study using participatory methods. Int J Nurs Stud. 2010; 47(11): 1397-1407.
16. Alderson, P., Sutcliffe, K., Curtis, K. Children as partners with adults in their medical care. Archives of Disease in Childhood. 2006; 91(4): 300-303.
17. Coyne I, Amory A, Kiernan G, Gibson F. Children’s participation in shared decision-making: Children, adolescents, parents and healthcare professionals’ perspectives and experiences. Eur J Oncol Nurs. 2014; 18(3): 273-280.
18. Coyne, I., Amory, A., Gibson, F., Kiernan, G. Information sharing between healthcare professionals, parents and children with cancer: More than a matter of information exchange. European Journal of Cancer Care. 2016; 25(1): 141-156.
19. Schalkers, I., Parsons, C. S., Bunders, J. F., Dedding, C. Health professionals' perspectives on children's and young people's participation in health care: A qualitative multihospital study. Journal of Clinical Nursing. 2016; 25(7-8): 1035-1044.
20. Smith, A. B. Children and young people's participation rights in education. The International Journal of Children's Rights. 2007; 15(1): 147-164.
21. Savage, E., Callery, P. Clinic consultations with children and parents on the dietary management of cystic fibrosis. Social Science & Medicine. 2007; 64(2): 363-374.
22. Pelander, T., Leinoâ€Kilpi, H. Children’s best and worst experiences during hospitalisation. Scandinavian Journal of Caring Sciences. 2010; 24(4): 726-733.
23. Coyne, I., Kirwan, L. Ascertaining children’s wishes and feelings about hospital life. Journal of Child Health Care. 2012; 16(3): 293-304.
24. Björk M, Nordström B, Hallström I. Needs of Young Children with Cancer During Their Initial Hospitalization: An Observational Study. J Pediatr Oncol Nurs. 2006;23(4):210-219.
25. Coyne I. Consultation with children in hospital: Children, parents’ and nurses’ perspectives. Journal of Clinical Nursing. 2006; 15: 61-71.
26. Kilkelly, U., Donnelly, M. The child's right to be heard in the healthcare setting: Perspectives of children, parents and health professionals. Office of the Minister for Children. 2006.
27. Kelsey, J., Abelson-Mitchell, N., Skirton, H. (2007). Perceptions of young people about decisions in the acute healthcare environment. Nursing Children and Young People. 2007; 19(6): 14-18.
28. Runeson, I., Mårtenson, E., Enskär, K. (2007). Children's knowledge and degree of participation in decisions when undergoing a clinical diagnostic procedure. Pediatric Nursing. 2007; 33(6): 505-511.
29. Coyne I, Gallagher P. Participation in communication and decision-making: Children and young people’s experiences in a hospital setting. J Clin Nurs. 2011; 20(15-16): 2334-2343.
30. Zwaanswijk, M., Tates, K., van Dulmen, S., Hoogerbrugge, P. M., Kamps, W. A., Bensing, J. M. Young patients', parents', and survivors' communication preferences in paediatric oncology: Results of online focus groups. BMC Pediatrics. 2007; 7(1): 35-45.
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Published
2018-07-31
How to Cite
Pien, L. S. (2018). Children’s Experiences in Health Care Decisions: An Overview. INTERNATIONAL JOURNAL OF CARE SCHOLARS, 1(2), 37–41. https://doi.org/10.31436/ijcs.v1i2.86
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